
Nothing has changed, and I’m still on track to be released tomorrow. Mom’s flight lands at Regan around noon, and hopefully she’ll be on the NIH campus by 1 pm. My goal is to have my car packed up and ready to go; I’m only slightly concerned. It’s not a huge car, and I ‘ve got a few suitcases, and so does Mom. If I can do transplant, I can surely pack my car, right?
Today was busy. Between the transplant discharge class, and meeting with my Team, I had a few other appointments. I snuck in a 20-minute power nap and rallied hard for my evening. At 1, I had a Pentamidine Treatment – I’m not sure if I’m spelling that correctly, but basically a respiratory therapist has me breath this medication that helps to prevent lung infections.

It was a close connection between OP9 (OutPatient 9) where the respiratory clinic is, back to 3NE in time for Art Therapy. If I get discharged, this will be my last Art Therapy session with Sarah. She’s awesome and I have really enjoyed our time together. I will NOT stop taking photos, but I had fun with acrylic paint today.


After ordering dinner – still on the GVHD “Low Lactose/Low Roughage – I started the task of packing. It’s just the closet and bathroom that I did – all of the art and cards are still up on the walls. But this is a start, and it counts for something. And I’m reminding myself that rooms are often messier before they get clean. Or something like that.

Tomorrow, if all goes as planned, Mom and I will move into our new home-away-from-home, apartment in Bethesda. Thank you Day + 28!
I am so glad all is a go for departure on Day+29. What a great beginning to the Thanksgiving weekend! Enjoy it completely even if some of the usual food items are not on the menu.
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Hope all goes well in your new home away from home. Keep up with the blogs. The good care of Mom
❤️Dad
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