Nothing has changed, and I’m still on track to be released tomorrow. Mom’s flight lands at Regan around noon, and hopefully she’ll be on the NIH campus by 1 pm. My goal is to have my car packed up and ready to go; I’m only slightly concerned. It’s not a huge car, and I ‘ve got a few suitcases, and so does Mom. If I can do transplant, I can surely pack my car, right?
Today was busy. Between the transplant discharge class, and meeting with my Team, I had a few other appointments. I snuck in a 20-minute power nap and rallied hard for my evening. At 1, I had a Pentamidine Treatment – I’m not sure if I’m spelling that correctly, but basically a respiratory therapist has me breath this medication that helps to prevent lung infections.
It was a close connection between OP9 (OutPatient 9) where the respiratory clinic is, back to 3NE in time for Art Therapy. If I get discharged, this will be my last Art Therapy session with Sarah. She’s awesome and I have really enjoyed our time together. I will NOT stop taking photos, but I had fun with acrylic paint today.
After ordering dinner – still on the GVHD “Low Lactose/Low Roughage – I started the task of packing. It’s just the closet and bathroom that I did – all of the art and cards are still up on the walls. But this is a start, and it counts for something. And I’m reminding myself that rooms are often messier before they get clean. Or something like that.
Tomorrow, if all goes as planned, Mom and I will move into our new home-away-from-home, apartment in Bethesda. Thank you Day + 28!
I am so glad all is a go for departure on Day+29. What a great beginning to the Thanksgiving weekend! Enjoy it completely even if some of the usual food items are not on the menu.
Hope all goes well in your new home away from home. Keep up with the blogs. The good care of Mom