Day +32, Saturday

Photo of the Day: Andy setting up Netflix in my room.; sometimes you need to cross your fingers for luck. In our case today, the fourth try was the charm.

Today was lovely and low-key. I’m still marveling at not having my blood drawn, weight measured and vitals taken at 5 am every morning – sleeping in feels like a luxury. I’ve still got my Central Line in, though and while it is very annoying (I used the word “hate” this morning), I also told Andy that I needed an attitude adjustment because it’s not going anywhere anytime soon.

I felt very grown-up for saying that.

Eventually we were all up, me, Andy and Mom. Then it was tea and breakfast type things for everyone, and tea and breakfast type things with an added 13 different medications for me. Honestly, it takes about an hour to get them all down, and there’s a specific order in which I take them. Anti-Nausea and Anti-GI upset first, followed by the Anti-Organ Rejection meds, and the list continues.

So I grabbed my tea and breakfast things – sourdough bread with grape jam, soda water and hot tea – and settled in to watch the finale of the Great British Baking Show with Andy. He humored me and stuck it out. Mom joined us for the final 10 minutes, and overall it was great!

The rest of the day involved a careful bath for me (making sure the Central Line dressing does NOT get wet. If it does, I need to go back to the NIH immediately to have it changed), binge watching Season 2 of The Mandalorian with Andy and Mom, a walk, a nap (not in that order), and another wonderful dinner (for me!) of buttered pasta with Parmesan cheese. Everyone else was stuck with Thanksgiving leftovers. I would have shared my pasta, but thankfully it didn’t come to that.

And now it’s late. Mom is asleep in the next room over, and Andy is next to me, laughing at silly memes and jokes. I’ve missed hearing his laugh, the steady intake of breath, having him close. I keep reminding myself that my time up in Bethesda is limited, it’s not forever. And that in the end, all will be well. So I’m going to enjoy curling up next to him and reading Harry Potter tonight, and another full day with him tomorrow. I’m so thankful to be here, out of the hospital, thankful for my donor, and grateful for all of the wonderful people in my life.

And Netflix working – yes, definitely grateful for that one as well.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s