Fall down 7 times, stand up 8.Japanese proverb
It never ceases to amaze me how quickly things can change. The weather, someone’s temper when they are hangry, or the body after a stem cell transplant. Earlier in the week, we were looking at discharge. Yesterday evening, though, I threw up and then started having worsening diarrhea.
I spent half the night in the bathroom. And let’s be honest: it’s never a good thing to spend half the night in the bathroom.
My Team had already been alerted by my night nurse and ordered a sample to rule out various diseases, or a bacterial overgrowth, or reaction to magnesium – those all came out negative. So now, the theory is that I’ve developed Graft vs Host Disease, where my new stem cells area attacking my GI system, because they see my GI system as a foreign invader.
How do we tell if it’s GvH? Well, I’ve been scheduled for an endoscopy and colonoscopy first thing Friday morning, where they will take biopsies and samples. If this is what it is, then we manage with steroids and do the best we can.
Needless to say, Mom isn’t flying out on Thursday and Andy won’t be joining us for the weekend. I’m incredibly disappointed and sad. Scare a little, too. I just want my body to be OK, but at Day +22, there are other things at work beyond my control. But the scared and hurt and fear is always present.
I’m not sure when I’ll be getting out, but I know it won’t be Friday and not on the weekend. I’m hoping for next week In the mean time, I’ll rest up and let my body figure out what to do. Because that’s all I can do.